My name is Jen. I am human. I have feelings, emotions, and thoughts. I also have a disease called endometriosis (en-doh-mee-tree-OH-suhs). Although I believe I have suffered from this disease since at least the age of 12, when I started menstruating, I was not diagnosed until I was 34. Endometriosis is a disease that is widely misunderstood. It is pervasive, affecting approximately 10% of women or 176 million girls and women worldwide (Please see the Endometriosis Research Center at http://www.endocenter.org/ for more information). Yet, Firefox does not recognize its correct spelling and provokes me to change it with its red squiggly underline. I am really considering writing or calling Mozilla about this issue. Are you listening Mitchell Baker??? Time listed you as one of the most influential people in the world in 2005. You are a woman. Yet, the product that you helped market as an alternative to Microshaft IE does not recognize the word, endometriosis. I am losing respect for your product as I write.
I cannot remember the number of doctors I have been to in my lifetime to report the debilitating symptoms, most notably PAIN, of endometriosis. Yet, it took 22 years for these numbskulls to diagnose me. (More on these various numbskulls later...) I am starting this blog to document my struggle and my journey. It will primarily revolve around my experiences with this illness. I have other interests, so I will occasionally write entries about them too. This blog is an attempt to reclaim the humanity that endometriosis and countless doctors robbed. This blog is crotch journalism. There are other crotch journalists reporting in wonderful and varied ways. I am thankful for them as they have inspired me to find my crotch's voice.
I must credit a thoughtful and wonderful colleague of mine who asked for a crotch report yesterday. Here is my crotch report for today:
I have no kidney stones and no UTI (Urinary Tract Infection). I was hoping that the primarily left-sided pelvic pain, flank pain, and pain under my ribs was (a) kidney stone(s). It is sad when you are hoping for kidney stones. I went to a urologist yesterday who tested my piss and did an ultrasound of my kidneys. Ironically, I was reading about the Rolling Stones in Keith Richard's Life as I waited for an hour to see the urologist. I'm still waiting on one culture that was sent off to a lab. I don't expect it to be cloudy. That ends today's crotch report.